Should Mom and Dad Live with Me?


When I was younger, this was an easy question to answer. My answer was a loud “YES”. Of course they would, after all, they took care of me all of my life, why wouldn’t I return the favor? I always questioned the motives of those who put their parents in nursing homes or other residential places. I always thought that maybe they didn’t love their parents as much as I. I thought that people who did that were selfish and uncaring.

As with everything else in life, not everything is so cut and dry. I learned these past few years that you have to do what is best for your parents and for your own health and sanity. Sometimes, that means moving them somewhere else whether you want to or not.

*Photo Credit- Elant.org

Raising a Family and Caring For Mom and Dad
My story is an all too familiar one for the thousands of families out there who are struggling to care for their children and care for their parents. It’s tough doing it on your own as an individual, it’s even tougher doing it while juggling other responsibilities such as: work, children, and being there for your own spouse, and the most important, having time for yourself!

There was a time when my Dad lived with my sister Josie and her family in Northern California. My Dad was still healthy and working. The reason, my parents bought a home down here in San Diego. My dad wanted to retire from his job of 30 years, so he flew back and forth for a couple of years. Because of the generosity of both my sister and her late husband my dad was able to work another 4 years living with them and retire. His 4 year stay was peaceful, and he thrived, so did my niece who had the opportunity to build a beautiful relationship with him. He contributed to meals, he helped with repairs, homework and so much more.

Fast forward 15 years later, my Dad is not so healthy and needs some assistance. He has osteoarthritis in both knees, can barely walk, has slowed down in his mental capacity and is just more frail now. While my Dad did live with me for a little while last year, it didn’t feel right. Why? My mom was stuck at a board and care 45 minutes away from us. We were trying to figure out what to do with both of them because my mom’s dementia had progressed so much that they could not safely live by themselves anymore. She was too much for me to care for because I have a toddler to raise. Could you imagine changing not only my daughter’s diapers but my mom’s as well? She wasn’t walking anymore and barely talking.

My home is too small and my sister now lives in a condo. There was no way my husband, daughter, and parents could live together in one roof. Something had to be done that would be best for all of us.

Health vs. Sickness
So when is it ok to have Mom or Dad or both live with you? It’s a personal choice for everyone. It also depends on how many people are willing to lend a helping hand, what financial resources are available and how Mom and Dad feel. Obviously,one parent is easier to care for than two. However, if that parent has health needs that go beyond the scope of what you are capable of providing, then they really should be in a place that could accommodate their health needs. If they are healthy, I don’t see why that would be a problem. It worked for my sister and dad in the past.

What’s best for Mom and Dad
I felt guilty when my sister and I first toyed with the idea of sending them to a couple of places including a board and care and assisted living community. This was after moving them from their house and then to an apartment. I was suddenly one of “those people” who put their parents in a home. After those 2 places didn’t work out, we had to send my mom to another board and care while my dad came to stay with me. We went back and forth whether to keep them together or apart, but ultimately in the end, they couldn’t for their own quality of life. They were separated from each other and we couldn’t let them live the rest of their lives apart. Yet, they couldn’t stay with me either. So, I struggled with that for a few months.

While none of those places worked out, we discovered that they are the happiest and healthiest together in their own place. Luckily for us, we have been blessed with a private caregiver who has been generous and compassionate to our needs. Although, we haven’t ruled out another board and care in the future should circumstances change. I personally believe it is the next best choice to home.

So what is the answer to, “Should Mom and Dad Live with Me?” . I think it should always be a MAYBE until you figure out all possible scenarios.

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Trigeminal Neuralgia – Gamma Knife Procedure Part II

Update:
Betty went in on Tuesday for her procedure. In all, she was there for about 4 hours. Most of the time was spent getting an MRI and getting fitted with her gamma ray head frame.

The most “invasive” part of the procedure was getting the headframe attached. They literally screwed the headframe to her head so that the possibility of a mistake occurring would be eliminated. The last thing you want are the gamma rays to destroy the wrong nerve.That would have been disastrous.

The report, from my sister Josie was that Betty started to get anxious when they were ready to place her inside of the machine. She was moving about so much that the doctors requested that Josie try to calm her down. She had to talk her through the entire procedure from another room on a microphone. (Because of the radiation exposure, only Betty was in the exam room).

It took 30 minutes for them to complete the procedure. Afterwards, Betty was free to leave. Unfortunately, she started having a really bad headache. This is part of the side effects some people feel. Some other side effects Josie was to look out for would be: blood oozing from the pin sites and vomiting. She spent the rest of the evening in bed and on Vicodin.

Yesterday, Josie told me that she was feeling much better, however, towards the evening she started feeling pain in her jaw again. Discouraged, she thought the procedure didn’t work. However, the doctors explained that it can take up to a few months before any significant type of relief is felt. Hopefully for Betty, it’ll be sooner than later.

So there you have it, that is the procedure simple and fast. I’ll do a follow up in a few months to see how she has progressed and post it here.

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Trigeminal Neuralgia – Gamma Knife Surgery Procedure


If you have read my previous article on Trigeminal Neuralgia, you know how devastating this disease can be to the sufferer. It has been described as the worst kind of pain, even worse than childbirth. It is also known as the “suicide-disease” because the pain is so excruciating that people actually welcome death and some have committed suicide as a result.

As stated in my previous article, my sister Josie’s mother-in-law Betty has been suffering from this horrible disease for close to 3 years now. She has gone to a handful of physicians where she lives in Northern California. Unfortunately, she only went to pain management specialists and not qualified neurosurgeons or neurologists. After some research here in San Diego, I was able to find a well-known specialist at the University of California. Dr.Alksne is a highly distinguished and published neurosurgeon at UCSD Medical Center and also a professor at the UC San Diego School of Medicine. Fortunately, Josie was able to make an appointment with Dr.Alksne, for Betty. Last week, she flew Betty down here to see him. During the consultation, he determined that Gamma Knife Surgery would be the best type of treatment for her.

Pre-Op Procedure
Fortunately, Dr.Alksne scheduled Betty for an appointment quickly. Just yesterday, she went in for her pre-op appointment.
1. She watched a video explaining the procedure and what it would do for her
2. She was given an explanation of what she would feel and exactly what side effects she may encounter. Side effects include: headaches and nausea.

Day of Procedure
Today is the BIG day for Betty. From 11:00- 3:00 PM Betty will be prepped for her procedure and ready to hopefully rid herself of this terrible ailment. Here is a general overview of what is going to happen.

  • Gamma Knife Head Frame is fitted: Gamma Knife Surgery is non-invasive, which means, they aren’t going to open her up! The only “invasive” part would be to fit the head frame. Betty will be given a local anesthetic and they will screw some pins on the side of her head to keep the frame in place. It looks scary, as they’ll give her shots in her temples. However, it should be quick and painless.
  • Image Test – Then, they will give Betty and MRI (Magnetic Resonance Imaging). Other imaging tests your doctor might give would include: CT or Angiography depending on what your diagnosis. Then, 4 doctors will review the results and determine the best way on how to attack the nerve that is causing the pain. This might take a little while, because they want to make sure that they get it right on cue.
  • Procedure- Finally, Betty will be wheeled into the Gamma Ray Knife Machine and she’ll lay down and her headframe will be attached to a collimator which will distribute the gamma rays precisely.
  • Afterwards, Betty will recover for a short period. They will remove her headframe, put some bandaids on the sides of her head and she should be ready to go home later today.

Our fingers are crossed! I will post an update on how it went tommorrow.
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