Are you grieving? I am. But Mom is still with us.

Grief results not only from the loss of a loved one. Sometimes we don’t know that’s the emotion we’re experiencing in a relationship, or even a job (which is also a relationship).

This morning, I recalled a therapy session years ago in which it was suggested I was grieving the loss of the relationship I once had with my, then, husband of 20 years. I wasn’t accepting that I could not change the facts. He was/is an abusive alcoholic . I was not accepting that I could not change him and the relationship would not be what I hoped or expected it would be.

What I learned was that I could only take care of me and my kids, be responsible for my own life, emotions and behavior. Eventually, I got past the grief and life improved significantly. We;re no longer married and I survived to find a happy life again.

Maybe it’s a stretch, but I may find this useful in dealing with my Mother’s dementia and it may help someone else here, too.

I believe I’m grieving:

The loss of the mother I used to know. We were the not best of friends ever, but I knew her, she knew me and we love each other. We still love each other but the “terms” are different. I miss her.

The loss of the socializing I/we used to enjoy before, when we were “normal”.

The loss of my personal time – I spend more time thinking about Mom and her needs than I do about own needs. It seems I have to make time to manage things in my own life! My wonderful new (10 years now) husband makes sacrifices regularly because I need to take care of things for Mom. I wish that were not the case. We deserve to celebrate our life together.

The loss of the famiy times that were about the family – not just Mom’s condition. We used to laugh and enjoy each other. Now …. well, it’s not the same anymore. There’s always that elephant in the room.

The loss of freedom to just “make plans” that don’t require making special arrangements for Mom.

The loss of energy and sleep because of concerns for Mom.

It occurs to me that I lost many of these same things when the kids were born. It was an exhausting period in life – but joyful and I did it willingly. Sure, I complained a bit then, too. But the outcome was different. (And I was younger.)

This new person, “Dementia”, was not an anticipated, joyful addition to the family. And this demon has taken over my mother without her consent or acceptance. I willingly take on this new “person”, but that doesn’t mean I have to like it.

Now, the question is, how do I grieve my way through this? It seems like it will be transitional, based on the progression of the disease.

So it seems I/we must be in ongoing therapy together here.

How are you dealing with the losses? Are you able to celebrate the rainbows that sometimes appear? What are they?

Let’s identify what it is we have lost and see if we can find a few rainbows together.

See the article here: Are you grieving? I am. But Mom is still with us.

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Communicating with Non-Speaking Parents

The Leopard Lacewing Cethosia cyane is a speci...

by Rose Broyles

Aging Care recently posted an article about how to approach communicating with a parent who no longer can speak. I thought about my own mom and how it  saddens me that she can’t speak much anymore. My mom used to be a social butterfly. Talking to other people was always easy for her. She could easily strike up a conversation with anyone at the grocery store.

Now, I’ll be lucky if I could get a few words out of her. It’s distressing, not only for me, but I’m sure for her too. She may have dementia, but she knows exactly what’s going on around her. I’ve had talks with Josie where I’d say that sometimes people tend to forget that Mom knows what’s going on even if she can’t communicate sometimes.

Mom can say things, especially if she’s in pain or if she’s hungry. Alot of times, I’ll look into her eyes and I can see in them: worry, curiosity, pain,etc. But then I think it’s easy for me to see that because it’s Mom. I know Mom. It’s alot easier when you know the person well.

So what do I do to talk to her? I think people tend to make things more complicated than they have to be. One of the first forms of communication that we experience when we are babies, is touch. Touch is an important part of expressing human emotions. The touch of a hand, stroke of a finger are more than enough to get a message across to someone. I’ll look at mom, maintain eye contact with her and hold her hand. I’ll rub her back and I’ll talk to her and tell her how my day went and ask her how she’s doing. She’ll say, “I’m fine”. I’ll continue with my conversation and I’ll ask her questions. She might not answer me the first time, but she usually does the 2nd or 3rd time. Now, I don’t suggest that you nag your parent to death. But sometimes, you have to coax them along and give them time to answer.

If your parent doesn’t speak at all, it still does not mean that you should ignore them or not think that there is absolutely no way to communicate. There are ways, you just have to find them. Play music, sing a song, draw a picture even.  Something that shows expression is a good way to communicate. Mine was just finding something to talk to mom about, whether it be the show we’re watching, how she’s feeling, what I’m doing , what my daughter is learning at preschool. Just remember, that your #1 goal is to get that message across no matter what method.

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