“Needing Elder Care When Family is Missing.”~ A touching video and news story today via KPBS

KPBS has provided a touching video and a great news segment today on seniors “Needing Elder Care When Family is Missing.”

The sad reality is that there are many seniors who live alone and live below poverty level with no one to care for them. They have no spouse nor children who they can rely on for support in times of need or illness such as going to the doctor or providing for grocery needs.

There is a support group and a facility in San Diego called, “The Wellness Center,” which provides  this sense of community and support for the elder care.  As the baby boomers approach their retirement and senior age, the need for such a facility is becoming more apparent.  Aging alone is becoming a social trend as seniors who have no spouse nor children find the need of this kind of support group.  The creation of the  “Wellness Center” in San Diego is a great example of a senior network that provides this extended family atmosphere for many seniors and elderly living alone…

I hope, like many who are caring for their elderly parents, that such a public policy and more of this charitable organizations will come into fruition for the aging baby boomers in the immediate future…

*****Video courtesy via KPBS, San Diego*****

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Senior Housing-There’s No Place Like Home


pulling hair out
Last year was probably the roughest year for my sister and I since our mom was diagnosed with Alzheimer’s Disease. We moved our parents from their 2nd story house, to an apartment, to a Residential Board and Care, to an Assisted Living Facility, split my parents- Dad went to me, Mom went to Skilled Nursing after a 7th and terrible fall (due to her constant wandering and poor balance) which left her face severely bruised and a concussion, to another Board-and-Care, and then back to a rented home where they have been since Fall of last year with a live-in-caregiver, our beloved Christina. (Who we found at one of the board-and-care facilities. She was a former employee).

If you can only imagine, this was done in a matter of 8 months. We wasted alot of time, energy, emotions,because we couldn’t really make an informed decision on what was best or where to go. It’s unfortunate, because my sister and I were really alone in all of this decision making. Some members of my family were not willing or able to make the commitment to plan for our parents’ care. I’m not bad-mouthing them, but it really is unfair, the burden that was placed on us. Family planning is important and getting EVERYONE on board is even more important for your parents care. This is the main reason for me creating this site. I know there are many of you who are now in the same position that we were in last year. It’s crazy, because we’ve only really experienced all of this in less than 2-3 years, yet we have learned so much about the process, that I’m almost ready to write a book! :)

I can’t stress enough how important it is to really think about your decision about moving your loved one outside of your home or their home. It could save you money, stress and distress to your loved one. We feel so bad for our mom especially, because she really went through alot last year with all of the moves. Our dad knew what was going on, so it didn’t really bother him. But she was so confused and scared.

Things didn’t work out, because we followed our “logic” too much and not what our hearts were telling us. I know I’m probably contradicting what many of the “professionals” would say. They would say, that what’s in your heart is not necessarily in the best interests of your loved one. While I agree with that to some extent, I know that emotions can cloud your judgment, I also know that no professional knows our parents more than we do. We knew that neither of them would fare well at any of these places, because it’s not who they were, it wasn’t their “culture”. I’ll explain more in detail.

The Personality and Culture Factor
What is the personality and culture factor? My parents are immigrants to this country. They immigrated here from the Philippines in the late 60s. My dad is a retired electrical engineer, he had no relatives here, no one but himself. When he was invited to work for a company here, he took the job and the chance. My mom followed thereafter, with my siblings, all on her own. Because of this independence, it took awhile for my dad to ask or even want help. Instead of asking for help at the assisted living facility, he kept to himself and stayed in his room and didn’t participate in activities. He also didn’t want to do anything without Mom.

Perhaps if my mom had been healthier, they would’ve participated in more. Problem is, they were separated at this place. It’s very problematic when you have a couple as opposed to one person. My mom couldn’t stay with my dad, she had to be in the Dementia Wing. My dad had no reason to go to any of these functions because my mom wasn’t there to participate. She had her own activities geared towards Dementia patients. The staff tried to get my dad to go, and he would for them, but didn’t on his own even when we showed him the calendar of events. He got more distressed being there, than being at home in front of a TV. Sometimes, people would rather be by themselves than be in big places such as these. You can’t force someone to change or want that kind of life. It’s a major upheaval after years of habit and lifestyle.

Culturally, Asians and Hispanics tend to be more family-centered. That is, they look towards family first before going to the outside. This is why you see fewer minorities in Assisted Living or Nursing Home situations, because it’s almost unheard of. Family always takes care of their elders. It’s difficult blending the American culture with the culture of the immigrant when it comes to later years, I’m sure he expected us to take care of them, which we are, but not in the traditional sense. He and my mom didn’t know about long-term insurance, or how Medicaid would work,the costs of nursing home care. In the Philippines, you just move your parents around through different relatives, not as much here. So of course, my parents preferred to be around us all the time, than a bunch of strangers.

They fared better at the board-and-care. But they had too many staffing problems, and internal problems, that we chose to take our parents out.

Why these homes didn’t work
We moved my parents in a matter of months. They were too dependent to be able to sustain themselves on their own at both their home and the apartment. The assisted living facility was too big and my mom needed constant supervision, that they couldn’t even provide at the Dementia unit. Finally, even the nursing home couldn’t handle my mom’s agitation after she recovered from her fall. They could only give her anti-psychotic drugs, (which she still takes in lower doses),and keep her restrained which made her more agitated. My mom would scream all night, and all day in the hall. The reason nurses kept her in the hall, was so they could keep an eye on her. There were only a few caregivers and about 25 patients on that floor. She fell the first night she was transferred from the hospital. They had to call us to pick her up after a month’s stay because she disrupting the well-being of other patients.

Home Sweet Home
Of course, many people would agree that the longer an aging parent is able to stay in their home, the better quality of life. Sometimes, it’s just not possible financially, or for safety reasons. Every one’s situation is different. My point here is, you really should assess every little detail when deciding which place is best. For us, it was renting a house for them and we were lucky to find someone privately, who we could negotiate salary with. You can’t really do that with agencies. If you depend on an agency for in-home care, that will far outweigh the costs of sending them to an assisted living facility. So far, the situation has worked out wonderfully, and my mom is as good as she can be.

The Best Places
If I were to choose the best scenarios, they would be:

  • Home
  • Board and Care
  • Continuing Retirement Community *if affordable
  • Assisted Living
  • Nursing Care * only if medically necessary, and only for a short while. I think this really diminishes the quality of life. Spend the money and have home-care instead, with the medical equipment at home and have people visit them if you aren’t able to on a constant basis. Look at your eldercare directory, they have companionship services as well. I think residents are more lonely at nursing homes and big assisted living facilities , than they would be with family at home. If anything, if they are healthy enough, send them to assisted living if they have no family around.
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    In my opinion, I think you and your family should be the judge of what housing situation is best for your parents. Don’t let any agency, advocate or staff person try to talk you into anything, no matter how good their intentions are. In the end, it is your parents’ well-being, both emotionally and physically. Behavioral therapy can’t change how your parents feel about things, even if they are impaired such as my mom. No amount of arts classes, or gardening can put the smile on my mom’s face, the way my daughter does when she runs in the room and says, “Hi PAM-MA , Hi PAM-MA” (She can’t pronounce “Grandma” so she says “PAM-MA”.

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Types of Senior Housing


Many people don’t know the difference between Nursing Homes, Retirement Communities, Assisted Living, RBCFs, etc. They assume that when Mom or Dad get sick, they go to the nursing home. There was a time when that was the only option. Now you have a plethora of places to select from. Not all of them are appropriate, and only Nursing Homes are currently covered by Medicare. The others are covered either out-of-pocket or through reverse mortgage loans, or with Medicaid when the senior is classified as “poverty level”. It gets complicated with Medicaid/Medicare coverage and you can read more directly at Medicare’s site. Hopefully, this will change soon, because a majority of seniors who do need help, don’t need all of the services of a nursing home. I can tell you from personal experience, that there are big differences between them, and none of them were appropriate for my mom, or my dad unfortunately. You can read my article “There’s No Place Like Home” to read more.


It’s really difficult for anyone to relate to what you’re going through when it comes to senior care, unless they are going through it themselves. We can all empathize, but we cannot truly see the complexity of the experience. You’re not only talking about a physical move to another place, but the emotions that go along with it: guilt, anxiety, relief, confusion. It’s not that easy. And just like a new parent, such as myself, it’s alot like choosing daycare, only you’re sending your parents away to live somewhere away from you, and away from what they may have considered home for years.

When It’s Time
There are many reasons why people decide to send their parents to places outside the home. Here are a few:

  • 24-hour care. You may be the only person, or you may have a family of your own. Either way, it can be physically impossible to provide the 24-hour assistance that your loved one may need.
  • Your health is starting to get affected.
  • Your loved one has violent outbursts or behavior that is dangerous to themselves or others.
  • Wandering behavior
  • Your loved one can’t do basic activities of daily living such as: hygiene, eating ,etc.

Type of Facility
Selecting a facility can be a long and arduous process, especially if you really have no idea what the difference is. Hopefully this list can help you get a better understanding of what each facility offers. Then, when you are ready to select one, you can go to a resource such as what I recommended in my article about “Searching for Senior Housing”, or speak to a professional at your local elder agency, or you can speak to the facility’s administrator directly.

  • Assisted Living Facilities- These types of facilities allow the senior to be fairly independent by providing apartment-style or dormitory style type living. These are best for relatively independent persons or in cases where the spouse and the impaired spouse want to stay together. This was the case, for my parents. Depending on the facility, there may be a simple kitchenette, like what you would find at a hotel.

    All of them have a main dining hall, or several dining halls and serve scheduled meals throughout the day. Sometimes the kitchen remains open if seniors just want to relax. There are even snack bars and convenience stores on site. There is transportation, recreation, 24-hour security, housekeeping and custodial services such as: bathing, dressing, eating, and toileting assistance. Sometimes, they may offer psychological and emotional behavioral therapies. It’s rare that an assisted living facility would offer skilled nursing care.

    Assisted Living is costly and depending on where your loved one lives, can range anywhere from $1000-3000 plus a month. One of the assisted living places we looked at had a cost of $8000/month.

  • Continuing Care Retirement Communities
    These are good for a “one-shot” deal. They are also very expensive but can provide a guarantee of lifetime shelter for residents. They have housing for every stage. This is similar to where my sister’s mother-in-law lives. They have individual one-story homes with garages (where she is), and on the same campus, there is a dementia unit, assisted living, hospital and nursing facility.

    The way it works is, the residents can move from one type of housing to another as their needs change. Luckily for Betty, she is still strong and able to remain independent in her own home. You can find out more information about Continuing Care Retirement Communities at AARP’s website.


  • Residential Care Facility
    These are also known as “board and care homes”. My parents also had a short stint at one of these. They are cheaper alternatives to traditional assisted living. Costs range from $1000-3000+/month. These homes are residential homes licensed by the state’s department of social services. These homes can be seen as a “home away from home”. It’s like a family setting. Each person has their own room or they share rooms for a cheaper price. There are no more than 6 people in a house, unless the board and care is a large facility with many rooms. But typically, a board and care may have 4-5 bedrooms. It’s a much more intimate atmosphere. These homes are appropriate for those who do not need skilled nursing services.

    Keep in mind that these are non-medical facilities. Residents are assisted with daily needs such as cleaning, bathing and eating. The downside to these would be similar to living at home where there may or may not be activities to do, unlike traditional assisted living where there are plenty of activities for seniors to do. These homes are not covered by Medicaid because they are not medical facilities. However, arrangements can be made with the owner or administrator to use monthly SSI payments to reimburse the facility.

  • Intermediate Care Facility
    There are not too many of these. These type of homes offer assistance with bathing, dressing ,getting out of bed, and some provide nursing care. However, these homes do not provide 24-hour skilled nursing services. ICFs are not licensed to accept incontinent patients or those who are non-ambulatory. Generally, these are a little cheaper than Skilled Nursing Facilities.
  • Skilled Nursing Facility
    These are also known as
    nursing homes, convalescent homes and rest homes. These provide 24-hour nursing care under the supervision of a Registered Nurse or a Licensed Vocational Nurse. Skilled Nursing Facilities are equipped to provide more extensive care, such as administering injections, monitoring blood pressure and caring for residents on ventilators. They also care for patients who require intravenous feeding. These facilities also provide custodial care. In addition, some other services may be offered such as: Physical Therapy, Speech Therapy and Occupational Therapy. This is the most expensive type of facility.

    Medicare only covers the medical services, not the custodial. It will pay 100% for Days 1-20 and from Days 21-100, the resident is responsible for about $100/day. They are either discharged or kept in the facility if the doctor approves and they feel the patient needs to stay for more rehabilitation. This co-pay is normally out of pocket until the patient’s assets are almost entirely exhausted. It is then that they are able to qualify for Medicaid (after reaching a certain income requirement) and pay for the rest of the services.

  • Special Care Units
    These are type of units are for those who have Alzheimer’s disease/dementia. They are normally designated areas of Assisted Living or Skilled Nursing Facilities. Not all assisted living and skilled nursing facilities have SCUs. Special Care Units, like the one at the larger assisted facility my mom stayed at, had special staff and security measures for wanderers. We had to buzz in, whereas, other areas in the assisted living facility were open to other residents and the public. This also not certified for Medicaid and is very expensive.
  • Psychiatric Locked Facilities
    These facilities provide 24-hour nursing care for those with violent, disruptive or wandering behaviors. Unlike Skilled Nursing, doors lock from the inside and have secured walking areas. In order to be placed here, voluntary consent must be set or a conservatorship must be obtained. State-administered psychiatric facilities may be fully or partially publicly funded.

Evaluating Care Facilities
As I said, this is a difficult decision to make. You really have to do your homework and visit many places, interview people, use a search agency and get personal referrals to see if a place will be right for your loved one. There are differences in philosophies of care, policies, preferences. For instance, some assisted living facilities, such as Silverado Living do not allow any kind of restraints on a patient. They feel it is both a safety hazard and a hindrance to rehabilitation. And unlike a skilled nursing facility, where medication is often prescribed for behavioral problems places like Silverado encourage behavioral therapies first before requesting the resident’s family to request medicine.

All of these places have an Ombudsman contact for any type of problem or violation that may occur. Many of these places, especially the larger ones, have Social Workers on-site as well as Geriatric Care Managers who can assist the families with long-term planning.

*credit Southern Caregiver Resource Center

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